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Search results for haemophilia

India’s first gene therapy offers new hope for haemophilia patients
1 week ago

India’s first gene therapy offers new hope for haemophilia patients

New Indian Express  

Results of the study conducted on the patients have been published in the recent edition of New England Journal of Medicine. The results of this clinical study reveal a new opportunity for gene therapy that can be offered to all haemophilia-A patients, possibly at an early age,” Dr Srivastava said. Physicians believe that the new gene therapy developed by CMC …

Therapy Gene Patients Gene Therapy Factor Haemophilia Factor Viii
How can gene therapy cure haemophilia A? | Explained
1 week, 2 days ago

How can gene therapy cure haemophilia A? | Explained

The Hindu  

The story so far: Medical researchers at the Christian Medical College, Vellore have reported successfully applying gene-therapy to treat severe haemophilia A, a rare, hereditary condition that results from a faulty gene which triggers severe, spontaneous and fatal bleeding episodes. As the disease is a condition resulting from low levels of clotting factor — necessary to prevent bleeding — replacement …

India Treatment Therapy Gene Gene Therapy Bleeding Vellore
New Haemophilia Care Centre Inaugurated at Guntur GGH Premises
2 months, 3 weeks ago

New Haemophilia Care Centre Inaugurated at Guntur GGH Premises

Deccan Chronicle  

VIJAYAWADA: Guntur Government General Hospital superintendent Dr Kiran Kumar, along with Guntur East MLA Mohammed Naseer Ahmed, inaugurated the Haemophilia Care Centre on the hospital premises on Sunday. GGH superintendent Dr Kiran Kumar mentioned that the centre has been established with the support of the state government. In a related development, doctors at Guntur GGH provided a new lease of …

Guntur Haemophilia Hospital Ggh Dr Kiran Kumar
Haemophilia care: Here's how benefits and risks related to treatment of haemophilia can be balanced
4 months, 2 weeks ago

Haemophilia care: Here's how benefits and risks related to treatment of haemophilia can be balanced

Hindustan Times  

Haemophilia is a hereditary disorder that affects the ability of the body to form blood clots because of deficiency of factor VIII or IX but people with haemophilia can have active, meaningful lives provided they receive a regimen of factor replacement along with a well-organised exercise regimen to strengthen the muscle groups around major joints. It's a collaborative effort between …

Treatment Therapy Patients Gene Therapy Treatments Factors Risks
Living well with haemophilia: Comprehensive fitness regimen and joint protection tips for patients to stay healthy
6 months ago

Living well with haemophilia: Comprehensive fitness regimen and joint protection tips for patients to stay healthy

Hindustan Times  

Haemophilia patients are prone to spontaneous bleeding in any part of the body but they are especially prone to bleeding in the joints. Living well with Haemophilia: Comprehensive fitness regimen and joint protection tips for patients to stay healthy In an interview with HT, Dr Kannan Subramanian, consultant hematologist at Sahyadri Speciality Hospital in Pune's Deccan Gymkhana, explained, “Haemophilia, is …

Bleeding Healthy Haemophilia Patients Dr Farah Jijina Healthy Haemophilia Haemophilia Patients
Lesser known facts about Haemophilia: Experts' insights on origin of disease and its impact on males
6 months ago

Lesser known facts about Haemophilia: Experts' insights on origin of disease and its impact on males

Hindustan Times  

In our country, haemophilia is often missed and in fact, it is often not diagnosed because of a lack of awareness about the disease, not only among the common people but also among the general medical profession. Lesser known facts about Haemophilia: Experts' insights on origin of disease and its impact on males {{^userSubscribed}} {{/userSubscribed}} {{^userSubscribed}} {{/userSubscribed}} In an interview …

Treatment Factor Males Hemophilia Dr Santanu Sen Disease Patients Lesser Known
World Haemophilia Day 2024: Know how genetic testing helps diagnose the rare bleeding disorder
8 months, 1 week ago

World Haemophilia Day 2024: Know how genetic testing helps diagnose the rare bleeding disorder

India TV News  

Hemophilia is a rare bleeding disorder, manifested by the inability of the blood to clot. Though, haemophilia A/B have treatment in the form of supplementation of factor and gene therapy, however, males affected with hemophilia suffer from various co-morbidities including joint pain, bone-related issues, swelling, internal bleeds apart from excessive bleeding even in minor injury. Thus, female family members may …

Gene Testing Help Genetic Genetic Testing Mutation Bleeding
Haemophilia awareness programme conducted at ICH
1 year, 7 months ago

Haemophilia awareness programme conducted at ICH

The Hindu  

A patient awareness programme for haemophilia and haemoglobinopathies was held at the Institute of Child Health and Hospital for Children on Tuesday. In a pilot phase, 16 children with haemophilia were being provided clotting factor concentrate prophylaxis at the nearby government hospital to avoid travel to ICH. HLA typing followed by bone marrow transplantation is being provided to children with …

Ich Haemophilia
World Haemophilia Day 2023: Theme, History, Diagnosis, Treatment and Quotes to Share
1 year, 8 months ago

World Haemophilia Day 2023: Theme, History, Diagnosis, Treatment and Quotes to Share

News 18  

WORLD HAEMOPHILIA DAY 2023: Haemophilia or hemophilia refers to a genetic abnormality which compromises the body’s ability to create blood clots to stop bleeding. World Haemophilia Day 2023: Theme The theme for World Haemophilia Day, as revealed by the WFH, is “Access for All: Prevention of bleeds as the global standard of care.” The WFH urges policy makers at the …

World Wfh Haemophilia World Haemophilia Day
Woman whose father died of Aids from infected blood urges Government apology
1 year, 11 months ago

Woman whose father died of Aids from infected blood urges Government apology

The Independent  

Get the free Morning Headlines email for news from our reporters across the world Sign up to our free Morning Headlines email Sign up to our free Morning Headlines email SIGN UP I would like to be emailed about offers, events and updates from The Independent. Read our privacy policy A University of Cambridge worker whose father died from Aids …

Children Blood Know Died Infected Infected Blood
Calendar 2023: List of Important National, International Days and Dates
1 year, 11 months ago

Calendar 2023: List of Important National, International Days and Dates

News 18  

CALENDAR 2023: Every month marks important events with days dedicated to them. Starting off the year with not just New Year’s but also Global Family Day, the year comes to a close with Boxing Day. January January 1, 2023: New Year’s Day and Global Family Day January 4, 2023: World Braille Day January 6, 2023: World War Orphans Day January …

India International World National 2023 International Day World Day
Pfizer's haemophilia B gene therapy succeeds in late-stage study
1 year, 11 months ago

Pfizer's haemophilia B gene therapy succeeds in late-stage study

The Hindu  

U.S. drugmaker Pfizer Inc. said on Thursday its experimental gene therapy for the treatment of haemophilia B, a rare inherited blood disorder, met its main goal in a late-stage study. Pfizer's therapy, fidanacogene elaparvovec, is designed to help patients produce factor IX themselves after a one-time treatment, as opposed to current treatments, which focus on regular infusions of the protein. …

Therapy Gene Pfizer Haemophilia Haemophilia B
UK contaminated blood inquiry: Finally getting answers for my dad
2 years, 5 months ago

UK contaminated blood inquiry: Finally getting answers for my dad

Al Jazeera  

Nearly 30 years after his death, some of those responsible for infecting my father with HIV and Hepatitis C are finally speaking the truth – and owning up their mistakes. He had contracted HIV and hepatitis C from a contaminated blood product called Factor VIII, which was given to people across the UK in the 1970s and 1980s to treat …

Hepatitis Blood My Father My Dad Factor Product Hiv
UK’s contaminated blood scandal inquiry: All you need to know
2 years, 5 months ago

UK’s contaminated blood scandal inquiry: All you need to know

Al Jazeera  

A blood treatment that infected 30,000 people with HIV and hepatitis C decades ago in the UK returns to the spotlight. A public inquiry into the infection of nearly 30,000 people through tainted blood treatment in the United Kingdom between the 1970s and 1980s has returned to the spotlight this week after former British Prime Minister Sir John Major appeared …

Treatment Scandal Victims Inquiry Bereaved Families Infected Blood
S.34 Rights Of Persons With Disabilities Act Challenged Over Exclusion Of Persons With Haemophilia: Rajasthan High Court Issues Notice
2 years, 8 months ago

S.34 Rights Of Persons With Disabilities Act Challenged Over Exclusion Of Persons With Haemophilia: Rajasthan High Court Issues Notice

Live Law  

The Rajasthan High Court has issued notice to Centre on a plea challenging the constitutionality of Section 34 of the Rights of Persons with Disabilities Act, 2016 inasmuch as it does not provide benefit of reservation to the persons with disability of Haemophilia. The petitioner also sought direction to the respondent authorities to include persons with disability of Haemophilia under …

Disability Reservation Disabilities Benchmark Act Petitioner Persons
Survivors and relatives of people who died in infected blood scandal sue school
2 years, 10 months ago

Survivors and relatives of people who died in infected blood scandal sue school

The Independent  

Sign up for our free Health Check email to receive exclusive analysis on the week in health Get our free Health Check email Get our free Health Check email SIGN UP I would like to be emailed about offers, events and updates from The Independent. Read our privacy policy A group of survivors and relatives of people who died in …

Treatment School Care Blood Health Check Pupils Infected
Eight centres of excellence set up to treat rare diseases
3 years, 1 month ago

Eight centres of excellence set up to treat rare diseases

The Hindu  

The Union Government has set up eight centres of excellence to treat those diagnosed with rare diseases such as thalassemia, haemophilia, and sickle cell anaemia. It was in response to a memorandum submitted by Mr. Karassery to then Union Minister for Health and Family Welfare Harsh Vardhan on December 12 last year, to mark Universal Health Coverage Day. In the …

Disease Rare Patients Rare Diseases Centre Treat Diseases
Sudarsan Pattnaik garners praise from UNEP for mesmerising sand art, Here are a few remarkable sculptures
3 years, 6 months ago

Sudarsan Pattnaik garners praise from UNEP for mesmerising sand art, Here are a few remarkable sculptures

Hindustan Times  

Sudarsan Pattnaik garners praise from UNEP for mesmerising sand art, Here are a few remarkable sculptures Renowned artist Sudarsan Pattnaik on Saturday garnered praise from the United Nations Environment Programme for his mesmerising sand sculpture on Odisha's Puri beach marking World Environment Day.. 1 / 7 View Photos in a new improved layout "Thank you international sand artist @sudarsansand for …

Art Photos View Sand Improved Layout Unep