Celine Dion says singing is ‘like somebody’s strangling you’ due to stiff-person syndrome
6 months, 2 weeks ago

Celine Dion says singing is ‘like somebody’s strangling you’ due to stiff-person syndrome

LA Times  

Since her 2022 diagnosis with stiff-person syndrome, Celine Dion has largely avoided the public eye. “I wasn’t ready to say anything before, but I’m ready now,” the singer says in the trailer for “I Am: Celine Dion,” premiering June 25 on Prime Video. Such spasms, Dion told NBC’s Hoda Kotb in a Friday tease to an upcoming “Today” interview, hinder her ability to perform or even carry out everyday tasks — and have broken her ribs. When she’s cooking, she said, “my fingers, my hands will get into a position … like, you cannot unlock them.” And singing, “it’s like somebody’s strangling you.” “She’s on, like, the fight of her life right now,” Kotb said in the tease. I’m working really hard to build back my strength, but touring can be very difficult even when you’re 100%,” Dion said at the time.

Dion Celine Dion  rare  syndrome  spasms  ready  stiffperson  dion  hard  strangling  im  singing  shes  celine  somebodys

History of this topic

Celine Dions speaks her heart out after dazzling Olympics performance amid rare syndrome diagnosis: ‘We know how hard…’
4 months, 3 weeks ago

Celine Dions speaks her heart out after dazzling Olympics performance amid rare syndrome diagnosis: ‘We know how hard…’

Hindustan Times  

Celine Dion surprised her fans and admirers with her dazzling return to the stage for the first time after she was diagnosed with Stiff Person Syndrome in 2022. Canadian Singer Celine Dion performed on the Eiffel Tower during the opening ceremony of the Paris 2024 Olympic Games, in Paris, on July 26, 2024. Celine Dion shares heartfelt message Stressing that …

Celine Dion shares beautiful message after her breathtaking comeback performance on the Eiffel Tower amid Stiff Person Syndrome battle - 28 years after Olympic debut
4 months, 3 weeks ago

Celine Dion shares beautiful message after her breathtaking comeback performance on the Eiffel Tower amid Stiff Person Syndrome battle - 28 years after Olympic debut

Daily Mail  

Celine Dion has admitted she's 'so full of joy' after her breathtaking comeback performance at the 2024 Paris Olympic Opening Ceremony on Friday night. Celine Dion, 56, has admitted she's 'so full of joy' after her breathtaking comeback performance at the 2024 Paris Olympic Opening Ceremony on Friday night 28 years after making her Olympic debut in 1996 at Atlanta's …

Inside Celine Dion's battle with illness threatening to 'turn her into a statue': Canadian singer, 56, disappeared from the spotlight after revealing stiff person syndrome diagnosis - but she's set to
4 months, 4 weeks ago

Inside Celine Dion's battle with illness threatening to 'turn her into a statue': Canadian singer, 56, disappeared from the spotlight after revealing stiff person syndrome diagnosis - but she's set to

Daily Mail  

Celine Dion will make a triumphant return to her music career in Paris tonight - two years after revealing she'd been diagnosed with the debilitating degenerative disorder known as Stiff Person Syndrome, which has derailed her career and threatens to 'turn her into a statue'. Celine wowed fans in Paris this week as she waved from her car after arriving …

Watch: Celine Dion makes surprise appearance at hockey event amid health battle
5 months, 3 weeks ago

Watch: Celine Dion makes surprise appearance at hockey event amid health battle

India Today  

During the 2024 NHL Draft on June 28, Montreal Canadiens brought Celine Dion to the stage to announce their fifth overall draft pick. Dion's dramatic pause before the announcement was noted as “the most dramatic draft announcement of all time” by NHL announcers. âœè pic.twitter.com/q53QwMupug — celine vocals June 29, 2024 Dion was accompanied by her 23-year-old son Rene-Charles Dion …

What IS the mysterious illness affecting Celine Dion, as the singer bravely releases film of an agonizing attack... and who is at risk?
5 months, 4 weeks ago

What IS the mysterious illness affecting Celine Dion, as the singer bravely releases film of an agonizing attack... and who is at risk?

Daily Mail  

Canadian singer Céline Dion has been hailed for bravely sharing harrowing footage of what it is like to live with stiff person syndrome. Céline Dion first revealed that she was suffering with the one-in-a-million condition stiff person syndrome in December 2022. Jerking stiff person syndrome: The rarest, most aggressive form, which includes symptoms from both the others, and also affects …

Celine Dion weeps as she demonstrates impact of Stiff Person Syndrome on her voice
5 months, 4 weeks ago

Celine Dion weeps as she demonstrates impact of Stiff Person Syndrome on her voice

The Independent  

Sign up to Roisin O’Connor’s free weekly newsletter Now Hear This for the inside track on all things music Get our Now Hear This email for free Get our Now Hear This email for free SIGN UP I would like to be emailed about offers, events and updates from The Independent. Read our privacy policy Celine Dion’s new documentary offers …

I Am: Céline Dion offers an unflinching look at the Canadian singer's life with stiff person syndrome
5 months, 4 weeks ago

I Am: Céline Dion offers an unflinching look at the Canadian singer's life with stiff person syndrome

ABC  

The final minutes of I Am: Céline Dion plunges deep into the agony of stiff person syndrome — a rare autoimmune neurological disorder that causes muscles to stiffen and spasm — as a seizure contorts the French Canadian superstar's body, leaving her twitching, moaning in pain and totally incapacitated. Fast facts about I Am: Céline Dion What: An intimate documentary …

Celine Dion documentary shows devastating moment she suffers ‘crisis’
6 months ago

Celine Dion documentary shows devastating moment she suffers ‘crisis’

The Independent  

Sign up to Roisin O’Connor’s free weekly newsletter Now Hear This for the inside track on all things music Get our Now Hear This email for free Get our Now Hear This email for free SIGN UP I would like to be emailed about offers, events and updates from The Independent. Read our privacy policy A new documentary shows the …

Stiff person syndrome: Could you have it?
6 months, 1 week ago

Stiff person syndrome: Could you have it?

Hindustan Times  

In December 2022, Canadian singer Celine Dion announced to the world that she was suffering from stiff person syndrome. Stiff person syndrome is an autoimmune disorder that leads to muscle stiffness and painful spasms “It’s like somebody’s strangling you. Recently, singer Celine Dion opened up about her stiff person syndrome diagnosis and how tough it was living with the painful …

Celine Dion plans Las Vegas show amid struggle with Stiff Person Syndrome: ‘I am back’
6 months, 1 week ago

Celine Dion plans Las Vegas show amid struggle with Stiff Person Syndrome: ‘I am back’

The Independent  

Sign up to Roisin O’Connor’s free weekly newsletter Now Hear This for the inside track on all things music Get our Now Hear This email for free Get our Now Hear This email for free SIGN UP I would like to be emailed about offers, events and updates from The Independent. Read our privacy policy Celine Dion has said she …

Celine Dion becomes emotional as she reveals her children are terrified she is going to die amid stiff person syndrome battle
6 months, 1 week ago

Celine Dion becomes emotional as she reveals her children are terrified she is going to die amid stiff person syndrome battle

Daily Mail  

Celine Dion has shared her deeply personal and emotional journey with stiff person syndrome in an exclusive interview for Sunrise. Celine Dion has shared her deeply personal and emotional journey with stiff person syndrome in an exclusive interview for Sunrise The 56-year-old songstress revealed that her sons Nelson, Eddy and Rene-Charles were worried she is going to die in a …

Celine Dion on performing again: Will go back onstage, even if I have to crawl
6 months, 1 week ago

Celine Dion on performing again: Will go back onstage, even if I have to crawl

India Today  

Celine Dion, the music legend behind timeless hits like 'My Heart Will Go On' and 'The Power of Love', is determined to grace the stage once again. This unwavering spirit comes in the face of her diagnosis with stiff person syndrome, a rare neurological disorder that causes muscle rigidity and spasms. Despite the challenges the disease presents, Dion declared, "I'm …

Celine Dion, 56, boldly declares 'my voice will be heard' as she vows to return to the stage amid her battle with stiff person syndrome: 'Even if I have to crawl'
6 months, 1 week ago

Celine Dion, 56, boldly declares 'my voice will be heard' as she vows to return to the stage amid her battle with stiff person syndrome: 'Even if I have to crawl'

Daily Mail  

Celine Dion has boldly declared that her voice will be heard as she vowed to return to the stage amid her battle with stiff person syndrome after revealing she secretly battled the disease for 17 years before going public in 2022. Celine Dion has boldly declared that her voice will be heard as she vowed to return to the stage …

Céline Dion demonstrates how stiff-person syndrome has affected her voice
6 months, 1 week ago

Céline Dion demonstrates how stiff-person syndrome has affected her voice

LA Times  

Céline Dion says she finds strength in and for her three sons to battle stiff-person syndrome, the rare neurological disorder that has prevented her from carrying on her celebrated singing career. The film, directed by Oscar-nominated filmmaker Irene Taylor, is billed as a “love letter” to Dion’s fans. After initial delays, Dion canceled the entire tour in May 2023, about …

Celine Dion, 56, tears up as she reveals she HID her stiff person syndrome for 17 YEARS before finally revealing her diagnosis - admitting the 'burden of lying became too much'
6 months, 2 weeks ago

Celine Dion, 56, tears up as she reveals she HID her stiff person syndrome for 17 YEARS before finally revealing her diagnosis - admitting the 'burden of lying became too much'

Daily Mail  

Celine Dion got emotional as she revealed that she secretly battled stiff person syndrome for 17 years before revealing it to the public, admitting that 'lying' to her fans was 'too much' for her to bear. Celine Dion revealed that she secretly battled stiff person syndrome for 17 years before revealing it to the public, admitting that 'lying' to her …

Celine Dion explains how incurable Stiff Person Syndrome condition affects her singing: ‘It’s like somebody is strangling you’
6 months, 2 weeks ago

Celine Dion explains how incurable Stiff Person Syndrome condition affects her singing: ‘It’s like somebody is strangling you’

The Independent  

Sign up to Roisin O’Connor’s free weekly newsletter Now Hear This for the inside track on all things music Get our Now Hear This email for free Get our Now Hear This email for free SIGN UP I would like to be emailed about offers, events and updates from The Independent. open image in gallery Dion told Hoda Kotb that …

I Am Celine Dion: Singer breaks down in tears in trailer for new documentary about Stiff Person Syndrome diagnosis
6 months, 3 weeks ago

I Am Celine Dion: Singer breaks down in tears in trailer for new documentary about Stiff Person Syndrome diagnosis

The Independent  

Sign up to Roisin O’Connor’s free weekly newsletter Now Hear This for the inside track on all things music Get our Now Hear This email for free Get our Now Hear This email for free SIGN UP I would like to be emailed about offers, events and updates from The Independent. In the movie’s first trailer, released on Thursday, Dion …

I Am: Celine Dion documentary - The singer, 56, breaks down in tears over battle with stiff person syndrome in first trailer for heartbreaking movie
7 months ago

I Am: Celine Dion documentary - The singer, 56, breaks down in tears over battle with stiff person syndrome in first trailer for heartbreaking movie

Daily Mail  

The first trailer for the new Celine Dion documentary I Am: Celine Dion dropped on Thursday morning, offering a heartbreaking glimpse inside the singer's brutal battle with stiff person syndrome. The first trailer for the new Celine Dion documentary I Am: Celine Dion offers a heartbreaking glimpse inside the singer's brutal battle with stiff person syndrome In the emotional video, …

Celine Dion addresses touring plans following Stiff Person Syndrome diagnosis
8 months ago

Celine Dion addresses touring plans following Stiff Person Syndrome diagnosis

The Independent  

Sign up to Roisin O’Connor’s free weekly newsletter Now Hear This for the inside track on all things music Get our Now Hear This email for free Get our Now Hear This email for free SIGN UP I would like to be emailed about offers, events and updates from The Independent. “I can’t answer that… Because for four years I’ve …

Celine Dion says dealing with incurable diagnosis ‘one of the hardest experiences’ of her life
9 months, 1 week ago

Celine Dion says dealing with incurable diagnosis ‘one of the hardest experiences’ of her life

The Independent  

Sign up to Roisin O’Connor’s free weekly newsletter Now Hear This for the inside track on all things music Get our Now Hear This email for free Get our Now Hear This email for free SIGN UP I would like to be emailed about offers, events and updates from The Independent. Read our privacy policy Celine Dion has said that …

Celine Dion poses with all 3 sons, pens powerful message on stiff person syndrome awareness day
9 months, 1 week ago

Celine Dion poses with all 3 sons, pens powerful message on stiff person syndrome awareness day

Hindustan Times  

Celine Dion, the Canadian singer known as the "Queen of Power Ballads," took a moment on Stiff Person Syndrome Awareness Day to thank her fans and family. Celine Dion delivers powerful message on stiff person syndrome awareness day "Today the world recognizes International SPS Awareness Day," the singer who last made her public appearance during the 2024 Grammys wrote on …

Celine Dion shocks Grammys audience with surprise appearance following incurable diagnosis
10 months, 2 weeks ago

Celine Dion shocks Grammys audience with surprise appearance following incurable diagnosis

The Independent  

Sign up to Roisin O’Connor’s free weekly newsletter Now Hear This for the inside track on all things music Get our Now Hear This email for free Get our Now Hear This email for free SIGN UP I would like to be emailed about offers, events and updates from The Independent. Read our privacy policy Celine Dion stunned the audience …

Celine Dion documentary to ‘raise awareness’ of singer’s battle with stiff person syndrome
10 months, 3 weeks ago

Celine Dion documentary to ‘raise awareness’ of singer’s battle with stiff person syndrome

The Independent  

Sign up to Roisin O’Connor’s free weekly newsletter Now Hear This for the inside track on all things music Get our Now Hear This email for free Get our Now Hear This email for free SIGN UP I would like to be emailed about offers, events and updates from The Independent. Read our privacy policy A new documentary about Céline …

Celine Dion's battle with incurable stiff-person syndrome and fight to relaunch career chronicled in emotional new documentary: 'I won't let this define me'
10 months, 3 weeks ago

Celine Dion's battle with incurable stiff-person syndrome and fight to relaunch career chronicled in emotional new documentary: 'I won't let this define me'

Daily Mail  

Celine Dion's battle with incurable condition stiff-person syndrome and her fight to continue her career will be chronicled in new documentary, I Am: Celine Dion. Celine Dion's battle with incurable condition stiff-person syndrome and her fight to continue her career will be chronicled in new documentary, I Am: Celine Dion The hitmaker, 55, announced in December 2022 that she had …

Celine Dion suffers from Stiff-Person syndrome: Know causes, symptoms of the rare condition
1 year ago

Celine Dion suffers from Stiff-Person syndrome: Know causes, symptoms of the rare condition

India TV News  

Famous singer Celine Dion of the Hollywood film 'Titanic' shared a very emotional video on Instagram. While addressing her millions of fans in her video, she said that she is struggling with Stiff Person Syndrome. According to the Stiff Person Syndrome Foundation, this disorder affects the central nervous system, specifically the brain and spinal cord. This neurological disease exhibits autoimmune …

Celine Dion’s sister shares heartbreaking health update after singer’s diagnosis
1 year ago

Celine Dion’s sister shares heartbreaking health update after singer’s diagnosis

The Independent  

Sign up to Roisin O’Connor’s free weekly newsletter Now Hear This for the inside track on all things music Get our Now Hear This email for free Get our Now Hear This email for free SIGN UP I would like to be emailed about offers, events and updates from The Independent. Read our privacy policy Celine Dion’s older sister Claudette …

Celine Dion doesn't have control over her muscles, says singer's sister
1 year ago

Celine Dion doesn't have control over her muscles, says singer's sister

India Today  

Singer Celine Dion's battle with rare neurological disorder called stiff-person syndrome has worsened. CELINE DION'S SISTER SHARES SINGER'S HEALTH UPDATE Speaking to 7 Jours, Claudette said, "What breaks my heart is that she's always been disciplined. During a social media interaction, Celine had shared, "Recently I have been diagnosed with a very rare neurological disorder called 'stiff person syndrome' which …

Celine Dion 'no longer has control over muscles' amid incurable stiff-person syndrome battle - as her sister reveals singer still 'dreams' of returning to the stage one day
1 year ago

Celine Dion 'no longer has control over muscles' amid incurable stiff-person syndrome battle - as her sister reveals singer still 'dreams' of returning to the stage one day

Daily Mail  

Legendary Canadian singer Celine Dion no longer has 'control over her muscles,' according to her older sister Claudette. A year after the My Heart Will Go On hitmaker was forced to cancel her world tour last December, her sibling, 74, suggested that it may be awhile before Celine, 55, returns to the stage following her battle with a neurological disorder …

Celine Dion’s sister shares new details on the superstar’s health
1 year ago

Celine Dion’s sister shares new details on the superstar’s health

LA Times  

Celine Dion performs prior to her diagnosis. It’s been a year since singer Celine Dion first publicly shared that she had been diagnosed with stiff-person syndrome, a rare neurological disorder that prevents her from singing the way she’s used to. She said in a video — shared in English and in French — that the neurological disorder “affects something like …

Celine Dion motivates Montreal hockey team amid private battle with rare disorder
1 year, 1 month ago

Celine Dion motivates Montreal hockey team amid private battle with rare disorder

LA Times  

Celine Dion is back in the public eye, meeting and posing with hockey players a year after she revealed her stiff-person syndrome diagnosis. “We’ve changed a little since then, but not too much.” Dion, who has kept her battle with stiff-person syndrome private, also met several players and shared some words of wisdom. She said in a video — shared …

Celine Dion’s sister says there’s ‘little’ anyone can do to ‘alleviate’ the singer’s pain right now
1 year, 3 months ago

Celine Dion’s sister says there’s ‘little’ anyone can do to ‘alleviate’ the singer’s pain right now

LA Times  

Celine Dion was diagnosed with stiff-person syndrome, a rare autoimmune disorder of the nervous system that often results in muscle stiffness and painful spasms that can worsen over time. “It’s an illness we know so little about,” said Claudette Dion, the sister of the “My Heart Will Go On” singer, who has served as Celine’s spokesperson in recent months. There’s …

Celine Dion's sister Claudette says 'strong' singer is 'doing everything she can to recover' as she battles incurable stiff person syndrome but admits there's 'little' they can do
1 year, 3 months ago

Celine Dion's sister Claudette says 'strong' singer is 'doing everything she can to recover' as she battles incurable stiff person syndrome but admits there's 'little' they can do

Daily Mail  

Celine Dion's sister Claudette said the 'strong' singer is 'doing everything she can' as she battles incurable stiff person syndrome. Awful: Celine Dion's sister Claudette said the 'strong' singer, 55, is 'doing everything she can' as she battles incurable stiff person syndrome Speaking in a new interview, Claudette, 74, heartbreakingly admitted there was little the family could do to support …

'Hope is important': Celine Dion's sister shares update on singer's health
1 year, 4 months ago

'Hope is important': Celine Dion's sister shares update on singer's health

India Today  

Celine Dion's sister, Claudette Dion, has provided an update on the singer's health amidst her battle with stiff person syndrome. In an interview with Le Journal de Montréal, Claudette revealed that the family has been unable to find any medicine that can effectively treat Celine's condition. Linda keeps Claudette informed about Celine's progress whenever she is unable to speak due …

Celine Dion’s sister gives an update on the singer’s stiff-person syndrome battle and says hope ‘is important’
1 year, 4 months ago

Celine Dion’s sister gives an update on the singer’s stiff-person syndrome battle and says hope ‘is important’

LA Times  

Celine Dion’s loved ones are rallying for the global superstar as she lives with stiff-person syndrome, a rare neurological disorder. Months after the “My Heart Will Go On” singer called off her Courage world tour, her sister Claudette Dion, 74, spoke to Le Journal de Montréal about the Grammy Award-winning artist’s time away from the stage. The Mayo Clinic defines …

Céline Dion cancels European concerts ‘until I’m really ready to be back on stage’
1 year, 6 months ago

Céline Dion cancels European concerts ‘until I’m really ready to be back on stage’

Associated Press  

Céline Dion has canceled all her scheduled tour dates through April 2024 as she continues treatment for a rare neurological disorder. It’s not fair to you to keep postponing the shows, and even though it breaks my heart, it’s best that we cancel everything now until I’m really ready to be back on stage again. Earlier this year, Dion said …

Celine Dion wishes fans ‘best of health’ in Christmas message after sharing Stiff Person Syndrome diagnosis
1 year, 11 months ago

Celine Dion wishes fans ‘best of health’ in Christmas message after sharing Stiff Person Syndrome diagnosis

The Independent  

Sign up to Roisin O’Connor’s free weekly newsletter Now Hear This for the inside track on all things music Get our Now Hear This email for free Get our Now Hear This email for free SIGN UP I would like to be emailed about offers, events and updates from The Independent. Read our privacy policy Celine Dion has wished fans …

Celine Dion cancels shows because of stiff person syndrome
2 years ago

Celine Dion cancels shows because of stiff person syndrome

Associated Press  

Celine Dion has put a halt on all performing after being diagnosed with a rare neurological disorder. In an emotional video messages posted in French and English on Thursday on Instagram, Dion said stiff person syndrome was causing spasms that affect her ability to walk and sing. “Unfortunately, the spasms affect every aspect of my daily life, sometimes causing difficulties …

Celine Dion reveals rare disorder that is forcing her to cancel more concerts
2 years ago

Celine Dion reveals rare disorder that is forcing her to cancel more concerts

LA Times  

Global superstar Celine Dion has pushed back her Spring 2023 concerts and several European tour dates after revealing Thursday that she has stiff-person syndrome, a rare neurological disorder that prevents her from singing the way she’s used to. “Recently, I’ve been diagnosed with a very rare neurological disorder called stiff-person syndrome, which affects something like one in a million people.” …

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