Dad given two years to live after cold fingers turn out to be deadly rare condition

Sign up to our free Living Well email for advice on living a happier, healthier and longer life Live your life healthier and happier with our free weekly Living Well newsletter Live your life healthier and happier with our free weekly Living Well newsletter SIGN UP I would like to be emailed about offers, events and updates from The Independent. open image in gallery Scott feels he has ‘plenty left’ after exceeding his life expectancy He was given less than two years to live in March 2022 but has exceeded this time frame and he now wants to raise awareness of the disease and urge others to push for early diagnoses so they can live longer and spend more time with their families – which for Scott is his wife, Charlotte, 48, his 15-year-old daughter Tiffany and his step-sons. “I was originally given less than two years to live and I’ve exceeded that already, I still feel like I’ve got plenty left,” Scott told PA Real Life. open image in gallery Scott’s hand compared with his wife’s hand He was advised to undergo chemotherapy treatment as he said the chemicals included can help soften the skin and tissue around the internal organs. open image in gallery Scott said his family members find his disease difficult to process “It’s not going to be a quick process for me, I know I’m going to suffer for a long time and the end.” Scott advised those who may have received a diagnosis “not to panic”.