Stigma, apathy, fatalism: The battle against sickle cell anaemia
1 year, 4 months ago

Stigma, apathy, fatalism: The battle against sickle cell anaemia

Hindustan Times  

Chandrika Ganesh, 25, is always tired. On July 1, Prime Minister Narendra Modi launched the National Sickle Cell Anaemia Elimination Mission in Shahdol in Madhya Pradesh, and said that the union government is committed to eliminating the disease before India celebrates its 100th year of Independence 2047. This card also allows me free medicines and treatment.” The politics On July 1, Prime Minister Modi said that the government was committed to eliminating the disease by 2047: “The National Sickle Cell Anaemia Elimination Mission takes a comprehensive approach towards combating sickle cell disease as the impact of a disease is not felt by the patient alone, but by the whole family.” Health minister Mansukh Mandaviya brought up the cards and said that people from high burden states must match these documents before marriage to ensure that the disease is not transferred to the next generation. “Our government will free tribal people from sickle cell anaemia by opening blood banks, enhancing screening and bone marrow transplant services among patients,” Modi said. Vinesh Jha, who has worked on tribal issues in Madhya Pradesh for years said that when people are asked about the sickle cell cards, the follow up question is often “kuch milega kya”.

History of this topic

Black man with sickle cell disease died ‘naked and alone’ in cell after complaining of breathing difficulties
1 month, 4 weeks ago
‘NHS is letting sickle cell patients down’ say parents of 22-year-old who died after hospital failings
3 months, 2 weeks ago
Andhra Pradesh Government on a mission to eradicate sickle cell anaemia by 2047
6 months, 3 weeks ago
Efforts on to curb spread of sickle cell anaemia among tribes in AP
6 months, 3 weeks ago
World Sickle Cell Day 2024: Types, causes, symptoms and treatment of this inherited blood disorder
6 months, 3 weeks ago
A Uganda rural community is a hot spot for sickle cell disease. A patient gives hope
7 months, 3 weeks ago
Sickle cell screening meets only 1% of target, hurting ambitious elimination goal
1 year, 9 months ago
Explained | How is India addressing sickle cell anaemia?
1 year, 10 months ago
7 crore people in tribal areas to be screened for sickle cell disease by 2025-26: FM
1 year, 11 months ago
Sickle Cell: NHS staff ‘failing to follow healthcare guidelines’
1 year, 11 months ago
Landmark sickle cell disease inquiry finds evidence of racism in patient care
3 years, 1 month ago
‘This illness alone is a pandemic’: Sickle cell patients hit by distressing delay in treatment during Covid-19
3 years, 3 months ago
Sickle cell patients are being ignored because they’re black, warn campaigners
3 years, 8 months ago

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