Costs to cut risk of sickle cell disease beyond reach of most in India: Lancet Commission
1 year, 5 months ago

Costs to cut risk of sickle cell disease beyond reach of most in India: Lancet Commission

The Hindu  

The costs required to reduce the risk of sickle cell disease are beyond the reach of most individuals in India and sub-Saharan Africa, where the disease is most prevalent, says a new Commission published in The Lancet Haematology journal. The Commission publishes shortly after a recent study in the same journal found that the highest burden of sickle cell disease disability was concentrated in western and central sub-Saharan Africa and India. “Whereas the majority of major causes of death are decreasing, the number of deaths due to sickle cell disease is increasing globally," said chair of the Commission, Frederic Piel from Imperial College London, U.K. "The costs required to reduce the risk of sickle cell disease is beyond the reach of most individuals in sub-Saharan Africa and India where the disease is most prevalent - it needs to be directly funded by governments," said Mr. Piel. "With adequate engagement of governments, the changes identified in our Commission are achievable and will improve the lives of people with sickle cell disease throughout the world," Mr. Piel added.

Disease Treatment Commission Cell Scd Sickle Sickle Cell Disease India Lancet Piel  trials  commission  treatment  scd  cell  reach  treatments  disease  sickle  cut  india  lancet  africa  costs  risk  subsaharan

History of this topic

Haematology Department at SCB Medical College, Cuttack to be one-stop centre for sickle cell anemia
Trending News
3 weeks, 2 days ago

Haematology Department at SCB Medical College, Cuttack to be one-stop centre for sickle cell anemia

The Hindu  

A team from the United Nations Children’s Fund visited the Haematology Department at SCB Medical College, Cuttack, to assess its potential for development as a one-stop centre for the treatment of sickle cell anemia. “A one-stop centre for sickle cell treatment will be established at SCB Medical College Hospital, offering comprehensive care under one roof. The UNICEF team and a …

4.75 crore people screened for sickle cell anaemia, 0.38% diagnosed: Health Minister Nadda
3 weeks, 3 days ago

4.75 crore people screened for sickle cell anaemia, 0.38% diagnosed: Health Minister Nadda

The Hindu  

More than 4.75 crore people, including 1,98,62,568 tribal persons living in tribal-dominated areas across 17 identified states, have been screened for sickle cell anaemia as of November 24, 2024, and of these, 0.38 per cent were diagnosed with the disorder, Union Health Minister J. P. Nadda informed the Lok Sabha on Friday, November 29. Mr. Nadda said a total of …

Overcoming Obstacles: Challenges for Pregnant Women with Sickle Cell Disease
5 months, 2 weeks ago

Overcoming Obstacles: Challenges for Pregnant Women with Sickle Cell Disease

Deccan Chronicle  

Sickle cell disease, poses unique and significant challenges for women during pregnancy. Sickle cell disease is associated with both maternal and fetal complications with increased incidence of perinatal mortality, premature labor, fetal growth restriction and acute painful crisis during pregnancy. Nausea and vomiting resulting in dehydration may precipitate crisis.The risk of worsening anaemia, increased risk of crisis, acute chest syndrome, …

Andhra Pradesh Government on a mission to eradicate sickle cell anaemia by 2047
6 months ago

Andhra Pradesh Government on a mission to eradicate sickle cell anaemia by 2047

New Indian Express  

VIJAYAWADA : Observing World Sickle Cell Disease Day, Principal Secretary Kantilal Dande highlighted the prevalence of the disease among the tribal population in the State. Speaking at a programme held at AIIMS, Mangalagiri on Wednesday, he revealed that approximately one in every 86 births among Scheduled Tribes results in a child with Sickle Cell Disease and the government aims to …

Efforts on to curb spread of sickle cell anaemia among tribes in AP
6 months ago

Efforts on to curb spread of sickle cell anaemia among tribes in AP

Deccan Chronicle  

Vijayawada: Principal secretary Kantilal Dande underlined that the state government is making all efforts to curb the spread of sickle cell anaemia, especially among tribal communities. Taking part in a programme to mark the World Sickle Cell Anaemia Awareness Day’ at AIIMS in Mangalagiri of Guntur district on Wednesday, he said the main objective of the National Sickle Cell Anaemia …

Pension benefit to sickle cell anemia affected people in J'khand's Khunti
6 months ago

Pension benefit to sickle cell anemia affected people in J'khand's Khunti

Hindustan Times  

People suffering from sickle cell anemia will get a monthly pension of ₹1,000 in Jharkhand's Khunti district, an official said on Wednesday. Representative image: sickle cell anaemia testing The Khunti district administration for the first time in Jharkhand has approved pension benefits for persons suffering from sickle cell anemia under Swami Vivekananda Nishakt Swawlamban Protsahan Scheme, he said. "Among them, …

World Sickle Cell Day 2024: Types, causes, symptoms and treatment of this inherited blood disorder
6 months ago

World Sickle Cell Day 2024: Types, causes, symptoms and treatment of this inherited blood disorder

India TV News  

World Sickle Cell Day is an annual event celebrated on June 19th to raise awareness about sickle cell disease and advocate for the rights of those who are affected by it. In this article, we have discussed the causes, types, symptoms and treatment for sickle cell disease. When we spoke to Dr Rahul Bhargava, Principal Director & Chief BMT, Fortis …

A Uganda rural community is a hot spot for sickle cell disease. A patient gives hope
7 months, 1 week ago

A Uganda rural community is a hot spot for sickle cell disease. A patient gives hope

The Independent  

For free real time breaking news alerts sent straight to your inbox sign up to our breaking news emails Sign up to our free breaking news emails Sign up to our free breaking news emails SIGN UP I would like to be emailed about offers, events and updates from The Independent. open image in gallery Barbara Nabulo cleans clothes at …

Sickle cell affects more families in Africa and India, but new gene therapies are out of reach
1 year ago

Sickle cell affects more families in Africa and India, but new gene therapies are out of reach

Associated Press  

Gautam Dongre’s two children in India and Pascazia Mazeze’s son in Tanzania live with an inherited blood disorder that turns blood cells into instruments of pain. Now that new gene therapies promise a cure for their sickle cell disease, Dongre says he’s “praying the treatment should come to us.” But experts say the one-time treatment is out of reach in …

Promising new gene therapies for sickle cell are out of reach in countries where they're needed most
1 year ago

Promising new gene therapies for sickle cell are out of reach in countries where they're needed most

The Independent  

For free real time breaking news alerts sent straight to your inbox sign up to our breaking news emails Sign up to our free breaking news emails Sign up to our free breaking news emails SIGN UP I would like to be emailed about offers, events and updates from The Independent. Now that new gene therapies promise a cure for …

Two gene therapies for sickle cell disease approved in US
1 year ago

Two gene therapies for sickle cell disease approved in US

The Independent  

For free real time breaking news alerts sent straight to your inbox sign up to our breaking news emails Sign up to our free breaking news emails Sign up to our free breaking news emails SIGN UP I would like to be emailed about offers, events and updates from The Independent. Read our privacy policy Regulators on Friday approved two …

The world’s first gene therapy for sickle cell disease has been approved in Britain
1 year, 1 month ago

The world’s first gene therapy for sickle cell disease has been approved in Britain

Associated Press  

LONDON — Britain’s medicines regulator has authorized the world’s first gene therapy treatment for sickle cell disease, in a move that could offer relief to thousands of people with the crippling disease in the U.K. “The use of the word ‘cure’ in relation to sickle cell disease or thalassemia has, up until now, been incompatible,” she said in a statement, …

UK becomes 1st country to approve gene therapy treatment for sickle cell, thalassemia
1 year, 1 month ago

UK becomes 1st country to approve gene therapy treatment for sickle cell, thalassemia

The Independent  

For free real time breaking news alerts sent straight to your inbox sign up to our breaking news emails Sign up to our free breaking news emails Sign up to our free breaking news emails SIGN UP I would like to be emailed about offers, events and updates from The Independent. Read our privacy policy Britain's medicines regulator has authorized …

Britain becomes first country to approve gene-therapy treatment for sickle cell disease
1 year, 1 month ago

Britain becomes first country to approve gene-therapy treatment for sickle cell disease

LA Times  

Britain’s medicines regulator has authorized the world’s first gene-therapy treatment for sickle cell disease, in a move that could offer relief to thousands of people with the crippling disease in the U.K. “The use of the word ‘cure’ in relation to sickle cell disease or thalassemia has, up until now, been incompatible,” she said in a statement, calling the MHRA’s …

Sickle cell disease in children: Early detection, intervention and long-term management
1 year, 4 months ago

Sickle cell disease in children: Early detection, intervention and long-term management

Hindustan Times  

Sickle cell anaemia is a serious health problem that affects millions of people in India where in the Indian belt, which includes the states of Gujarat, Maharashtra, Chhattisgarh, Orissa and some of Bengal, sickle cell anaemia is most common while there are also areas in Tamil Nadu, Kerala, the South and Telangana that are affected by it. According to the …

PM Modi launches National Sickle Cell Anaemia Elimination Mission, read about the disease
1 year, 5 months ago

PM Modi launches National Sickle Cell Anaemia Elimination Mission, read about the disease

Op India  

On the 1st of July, Prime Minister Narendra Modi launched the National Sickle Cell Anaemia Elimination Mission from Shahdol, Madhya Pradesh. But some red blood cells of an SCD patient become rigid and sickle or crescent-shaped, which slows or blocks the flow of blood, resulting in the name sickle cell anaemia. Components of the National Sickle Cell Aanemia Elimination Mission …

AP screens for sickle cell disease in agency districts
1 year, 5 months ago

AP screens for sickle cell disease in agency districts

Deccan Chronicle  

Vijayawada: The Andhra Pradesh government has taken up screening for sickle cell disease in Alluri Sitarama Raju and Parvathipuram districts as a pilot project. While Prime Minister Narendra Modi launched the Sickle Cell Anaemia Mission in Madhya Pradesh on Saturday, AP health minister Vidadala Rajani disclosed that the Centre has allotted AP the target of screening 19,90,277 tribal people for …

Thalassemia & Sickle Cell Society Hyd Asks Modi to Make HbA2 Test Mandatory
1 year, 6 months ago

Thalassemia & Sickle Cell Society Hyd Asks Modi to Make HbA2 Test Mandatory

Deccan Chronicle  

Hyderabad: Thalassemia & Sickle Cell Society, the biggest society in the world - serving for Thalassemia Patients, submitted a compelling letter to the Prime Minister's Office & Ministry of Health – Govt.of India requesting to pass a Bill in Parliament or Government Order for the mandatory implementation of the HbA2 test in all hospitals nationwide for pregnant women. In their …

Sickle Cell Disease 11 Times More Deadly; 40% Increase in Patients Globally, Shows New Study
1 year, 6 months ago

Sickle Cell Disease 11 Times More Deadly; 40% Increase in Patients Globally, Shows New Study

News 18  

Sickle cell disease is eleven times more deadly than previously recorded levels, a new study has found. A new analysis provides a picture of sickle cell disease mortality burden by combining disease prevalence data across different age groups and trends in overall survival, when factoring in resulting secondary conditions. “The largest increases in total deaths due to sickle cell disease …

India’s stretched health care fails millions in rural areas
1 year, 8 months ago

India’s stretched health care fails millions in rural areas

Associated Press  

SURGUJA, India — Poonam Gond is learning to describe her pain by numbers. ___ Gond’s sickle cell disease was diagnosed late, and she often doesn’t have access to medicine that keeps the illness under control and reduces her pain. Like Gond, Aayam was born into an Indigenous farming family in central India’s Chhattisgarh state, but before her pain began she …

Sickle cell screening meets only 1% of target, hurting ambitious elimination goal
1 year, 9 months ago

Sickle cell screening meets only 1% of target, hurting ambitious elimination goal

The Hindu  

With barely two weeks left in the fiscal year, the Health Ministry has completed a miniscule 1% of its ambitious target to scan one crore people for sickle cell disease in 2022-23. The Ministry is starkly behind schedule, having screened just a little over one lakh people this year, according to official data accessed by The Hindu from the National …

Early diagnosis can treat sickle cell disease effectively
1 year, 9 months ago

Early diagnosis can treat sickle cell disease effectively

Deccan Chronicle  

The Hon’ble Prime Minister Narendra Modi has shined a spotlight of hope for the large population of people suffering from sickle cell disease in India. Nirmala Sitharaman, our hon’ble finance minister, and the new proposed scheme for Sickle cell disease awareness and screening has given a huge boost to the patients suffering from this disease. The problem of sickle cell …

Centre is onboarding States to start screening for sickle cell disease: Health Ministry
1 year, 9 months ago

Centre is onboarding States to start screening for sickle cell disease: Health Ministry

The Hindu  

Laying out the strategy to eliminate sickle cell disease in India, Union Health Secretary Rajesh Bhushan said that the Indian Council of Medical Research has conducted an assessment of the diagnostic tests to be used for the purpose of screening a target group of seven crore people. He elaborated that the portal on sickle cell disease management has already been …

Explained | How is India addressing sickle cell anaemia?
1 year, 10 months ago

Explained | How is India addressing sickle cell anaemia?

The Hindu  

The story so far: Sickle cell anaemia, a genetic blood disorder, found mention in the Budget this year. Unusual, because unlike their usual globular structure with an indented center – like a doughnut with a hole – these blood cells were shaped like a sickle, similar to the letter C. This was the first description of sickle cell anaemia in …

7 crore people in tribal areas to be screened for sickle cell disease by 2025-26: FM
1 year, 10 months ago

7 crore people in tribal areas to be screened for sickle cell disease by 2025-26: FM

The Hindu  

Finance Minister Nirmala Sitharaman on Wednesday announced the National Sickle Cell Elimination Mission — with targeted screening and intervention in tribal populations — set to be anchored by the Ministry of Tribal Affairs and run by the Health Ministry under the aegis of the National Health Mission. It will entail awareness creation, universal screening of seven crore people in the …

Union’s mission on eliminating sickle cell anaemia boon to ASR district
1 year, 10 months ago

Union’s mission on eliminating sickle cell anaemia boon to ASR district

Deccan Chronicle  

VISHAKHAPATNAM: Union finance minister Nirmala Sitharaman’s announcement that the government will launch a mission to eliminate sickle cell anaemia by 2047 is a boon to the million people living in AP’s ASR district. Talking to this correspondent soon after the budget session, Dr. Prasad said after 570 cases of sickle cell anaemia had been confirmed, Integrated Tribal Development Agency commissioned …

Centre’s mission to eliminate sickle cell anaemia misguided, says public health activist K.P. Aravindan
1 year, 10 months ago

Centre’s mission to eliminate sickle cell anaemia misguided, says public health activist K.P. Aravindan

The Hindu  

Union Finance Minister Nirmala Sitharaman’s announcement in the Union Budget of a mission to eliminate sickle cell anaemia by 2047 could very well be “a case of misplaced priorities” or may not have been thought through, according to K.P. Aravindan, public health activist and former Professor of Pathology, Goverment Medical College, Kozhikode, who has been working among SCA patients in …

In Budget 2023-24, Centre’s hard push to eliminate sickle cell anaemia by 2047
1 year, 10 months ago

In Budget 2023-24, Centre’s hard push to eliminate sickle cell anaemia by 2047

Hindustan Times  

NEW DELHI The Union ministry of health and family welfare plans to go big on counselling of couples and creating general awareness among people in sickle cell disease-affected areas to eliminate the risk of children being born with the disease, health minister Mansukh Mandaviya said during a post-Budget briefing on Wednesday. Union health minister Mansukh Mandaviya said the health ministry …

Sickle Cell: NHS staff ‘failing to follow healthcare guidelines’
1 year, 10 months ago

Sickle Cell: NHS staff ‘failing to follow healthcare guidelines’

The Independent  

Get Nadine White's Race Report newsletter for a fresh perspective on the week's news Get our free newsletter from The Independent's Race Correspondent Get our free newsletter from The Independent's Race Correspondent SIGN UP I would like to be emailed about offers, events and updates from The Independent. Read our privacy policy NHS staff are failing to follow guidelines for …

Budget 2023: Government to roll out mission to eliminate sickle cell anaemia by 2047
1 year, 10 months ago

Budget 2023: Government to roll out mission to eliminate sickle cell anaemia by 2047

The Hindu  

The government will roll out a mission to eliminate Sickle Cell Anaemia by 2047, Finance Minister Nirmala Sitharaman announced in her Union Budget 2023-24 speech on Wednesday. Follow Live Updates Here Announcing initiatives for the health sector, the Finance Minister told Parliament, “The mission will entail awareness creation, universal screening of seven crore people in the age group of 0-40 …

Govt Set to Draw First Blood in Battle to Beat Sickle Cell Anaemia by Screening 7 Cr People in Next 3.5 Years
2 years, 1 month ago

Govt Set to Draw First Blood in Battle to Beat Sickle Cell Anaemia by Screening 7 Cr People in Next 3.5 Years

News 18  

With a focus on 17 selected states, the government has decided to adopt a “multifaceted" approach to tackle the prevalence of the disease and cover the population from zero to 40 years under the National Health Mission. The Narendra Modi government has decided to screen 7 crore people in a mission mode for the genetic blood disorder sickle cell anaemia …

Sickle cell: NHS to investigate racial inequalities for first time
2 years, 3 months ago

Sickle cell: NHS to investigate racial inequalities for first time

The Independent  

Get Nadine White's Race Report newsletter for a fresh perspective on the week's news Get our free newsletter from The Independent's Race Correspondent Get our free newsletter from The Independent's Race Correspondent SIGN UP I would like to be emailed about offers, events and updates from The Independent. Read our privacy policy Sickle cell patients’ experiences of barriers to treatment …

World Sickle Cell Day: NHS rolls out new sickle cell treatment amid first national awareness campaign launch
2 years, 6 months ago

World Sickle Cell Day: NHS rolls out new sickle cell treatment amid first national awareness campaign launch

The Independent  

Get Nadine White's Race Report newsletter for a fresh perspective on the week's news Get our free newsletter from The Independent's Race Correspondent Get our free newsletter from The Independent's Race Correspondent SIGN UP I would like to be emailed about offers, events and updates from The Independent. Read our privacy policy Patients and campaigners have hailed a new NHS …

World sickle cell awareness day 2021: All you need to know
3 years, 6 months ago

World sickle cell awareness day 2021: All you need to know

Hindustan Times  

World Sickle Cell Awareness Day is observed every year on June 19 to increase awareness and understanding of the disease and the challenges faced by its patients and their families. Sickle cell disease causes patients to have sickle-shaped red blood cells that can stick together and block blood flow and oxygen from reaching all parts of the body. People who …

Sickle cell patients are being ignored because they’re black, warn campaigners
3 years, 8 months ago

Sickle cell patients are being ignored because they’re black, warn campaigners

The Independent  

Get Nadine White's Race Report newsletter for a fresh perspective on the week's news Get our free newsletter from The Independent's Race Correspondent Get our free newsletter from The Independent's Race Correspondent SIGN UP I would like to be emailed about offers, events and updates from The Independent. Chris Abdullahi, co-founder of charitable initiative Sound of Sickle, told The Independent …

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