Fifty children, who have been diagnosed with Spinal Muscular Atrophy, will receive free lifelong access to Risdiplam, an oral treatment for SMA, thanks to Care and Protection of Children Trust, an NGO aiming to support people with rare diseases. Under the Free Medicine Access Programme, children will receive continuous care and access to treatment at the Indira Gandhi Institute of …
It is crucial to raise awareness about the disease among specialists like paediatricians and neurologists to recognize its early signs. Need better awareness in India In India, delay in the diagnosis of SMA stems from a limited number of labs performing genetic diagnostic studies and low disease awareness. Timely diagnosis and early initiation on therapy can help SMA infant patients …
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