thats spine refunded delhi injury car york hindutva covid19 china shows case better patients suffering symptoms paralympics amid children perfect need couple treat neck tips australian day hospital leg price

Articles for Spinal Muscular Atrophy

Need for awareness to tackle symptoms of Spinal Muscular Atrophy
2 weeks, 1 day ago

Need for awareness to tackle symptoms of Spinal Muscular Atrophy

Deccan Chronicle  

Hyderabad: Eminent experts in the state have put an impetus on the need to highlight the significance of spreading awareness about the symptoms of Spinal Muscular Atrophy and management strategies to mitigate its impact on patients and their families. It is crucial to raise awareness among healthcare professionals, expectant parents, and the public about rare diseases and SMA so that …

Symptoms Sma Spinal Muscular Atrophy Muscle Weakness Respiratory Muscle
Spinal muscular atrophy Symptoms in Infants Every Parent Should Know
4 months, 1 week ago

Spinal muscular atrophy Symptoms in Infants Every Parent Should Know

Deccan Chronicle  

SMA can affect a child's ability to crawl, walk, sit up, and control head movements. Recognizing the early signs and symptoms of Spinal Muscular Atrophy in infants is crucial for timely intervention and treatment. Dr. Ramesh Konanki, Consultant Pediatric Neurologist at Rainbow Children’s Hospital, Hyderabad told “Children who have noticeable SMA symptoms shortly after birth usually are very weak. Poor …

Symptoms Sma Spinal Muscular Atrophy
Jaipur baby gets world’s most expensive injection worth ₹17 crore; crowdfunding led by Sonu Sood, Deepak Chahar
7 months, 1 week ago

Jaipur baby gets world’s most expensive injection worth ₹17 crore; crowdfunding led by Sonu Sood, Deepak Chahar

Live Mint  

In a remarkable display of communal solidarity, the city of Jaipur rallied behind twenty-two-month-old Hridyansh in his battle against Spinal Muscular Atrophy Type 2. Notable figures like cricketer Deepak Chahar and actor Sonu Sood lent their voices to the cause, amplifying its reach across social media platforms. As reported by IANS, the doctor said, “The world's most expensive injection, costing …

Jaipur Sma Ians Spinal Muscular Atrophy Hridyansh
Hyderabad Doctors Urge Action on Comprehensive Policy and Enhanced Patient Care
9 months, 3 weeks ago

Hyderabad Doctors Urge Action on Comprehensive Policy and Enhanced Patient Care

Deccan Chronicle  

Hyderabad: With Rare Diseases Day on 29 February, healthcare experts are calling for a comprehensive Rare Disease Policy as the need of the hour. According to the World Health Organization, rare diseases typically affect fewer than 1 in 1,000 individuals, and in India, around 70 million people grapple with 450 rare diseases, including the particularly debilitating Spinal Muscular Atrophy. Dr. …

India Policy Hyderabad Rare Care Rare Diseases Diseases
Guj: Bharuch Family Needs Injection Worth Rs16 Cr for Child Diagnosed With Spinal Muscular Atrophy
3 years, 4 months ago

Guj: Bharuch Family Needs Injection Worth Rs16 Cr for Child Diagnosed With Spinal Muscular Atrophy

News 18  

After Dhairyaraj Sinh of Mahisagar district and Vivan Vadhel of Gir Somnath district of Gujarat, another child was diagnosed with a rare disease called Spinal Muscular Atrophy. People collected Rs 16 crore needed for the treatment in Dhairyaraj Sinh’s case. Now, a similar Rs 16 crore injection is required for Parth Pawar of Bharuch for the spinal muscular atrophy Type-1 …

Spinal Muscular Atrophy Bharuch Rs16 Cr
Roche introduces oral treatment for individuals suffering from Spinal Muscular Atrophy: Details on Evrysdi
3 years, 4 months ago

Roche introduces oral treatment for individuals suffering from Spinal Muscular Atrophy: Details on Evrysdi

Firstpost  

Launched by Roche, Evrysdi is the first and only treatment approved in India for spinal muscular atrophy patients. Roche has launched an oral treatment for adults and children who are suffering from Spinal Muscular Atrophy. Spinal muscular atrophy is an inherited illness that causes muscle weakness by gradually destroying motor neurons. In order to ensure that people have ready access …

India Treatment Sma Roche Spinal Muscular Atrophy Smn Evrysdi
Gujarat Couple Raise Rs 16 Crore via Crowdfunding to Save 5-Month-Old Son
3 years, 7 months ago

Gujarat Couple Raise Rs 16 Crore via Crowdfunding to Save 5-Month-Old Son

News 18  

A couple from Gujarat has raised Rs 16 crore with the help of a crowdfunding platform to buy a gene therapy injection for the treatment of their 5-month-old son suffering from spinal muscular atrophy, a rare genetic disorder. Mr Rathod said he and his wife Jinalba managed to raise 16 crore for their son Dhairyaraj’s treatment within 42 days of …

Gujarat Gene Crore Son Injection Spinal Rathod
PM Modi Waives off Rs 6 Crore Tax on Imported Medicine for 6-month-old Baby Girl from Mumbai
3 years, 10 months ago

PM Modi Waives off Rs 6 Crore Tax on Imported Medicine for 6-month-old Baby Girl from Mumbai

News 18  

For baby Teera Kamat, who has been on the earth for a mere six months, every day has been a struggle for existence and a grim reminder to her parents about the fragile little being that needed a miracle to be saved. On Wednesday, Prime Minister Narendra Modi, in a humanitarian move, decided to waive off Rs 6 crore as …

Disease Age Months Type Sma Spinal Muscular Atrophy Zolgensma