Hyderabad: With Rare Diseases Day on 29 February, healthcare experts are calling for a comprehensive Rare Disease Policy as the need of the hour. According to the World Health Organization, rare diseases typically affect fewer than 1 in 1,000 individuals, and in India, around 70 million people grapple with 450 rare diseases, including the particularly debilitating Spinal Muscular Atrophy. Dr. …
After Dhairyaraj Sinh of Mahisagar district and Vivan Vadhel of Gir Somnath district of Gujarat, another child was diagnosed with a rare disease called Spinal Muscular Atrophy. People collected Rs 16 crore needed for the treatment in Dhairyaraj Sinh’s case. Now, a similar Rs 16 crore injection is required for Parth Pawar of Bharuch for the spinal muscular atrophy Type-1 …
A couple from Gujarat has raised Rs 16 crore with the help of a crowdfunding platform to buy a gene therapy injection for the treatment of their 5-month-old son suffering from spinal muscular atrophy, a rare genetic disorder. Mr Rathod said he and his wife Jinalba managed to raise 16 crore for their son Dhairyaraj’s treatment within 42 days of …
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