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Articles for Spinal, search results for rare

Girl paralysed from the neck down by ultra-rare condition hopes to score Disney film
3 months, 3 weeks ago

Girl paralysed from the neck down by ultra-rare condition hopes to score Disney film

The Independent  

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Music Life Disney Hospital Image Your Life Condition
Doctors at AIIMS Bibinagar Remove Rare Human Tail From 3-Month-Old Boy
5 months, 1 week ago

Doctors at AIIMS Bibinagar Remove Rare Human Tail From 3-Month-Old Boy

Deccan Chronicle  

Yadadri-Bhongir: The All India Institute of Medical Sciences, Bibinagar, performed a surgery on a three-month-old male infant to remove a rare human tail from the lumbosacral region. Dr Shashank Panda, the head of paediatric department at AIIMS Bibinagar, said the human tails are very rare cases and only 40 cases have been operated successfully so far in the world. The …

Surgery Boy Tail Rare Human Bibinagar
Second Edition of Run/Ride for SMA in Hyderabad
5 months, 1 week ago

Second Edition of Run/Ride for SMA in Hyderabad

Deccan Chronicle  

SMA is a rare and devastating genetic disease that affects the motor nerve cells in the spinal cord, leading to muscle weakness and progressive loss of movement. According to Dr. Ramesh Konanki, Consultant Pediatric Neurologist at Rainbow Hospital, "For every 2 and half hours, one SMA-positive baby is born in India. Emphasizing the importance of preventive measures, Dr. Tella Sunitha, …

India Sma
Noida’s children’s hospital makes testing for spinal muscular atrophy free
7 months, 2 weeks ago

Noida’s children’s hospital makes testing for spinal muscular atrophy free

Hindustan Times  

Noida’s Post Graduate Institute of Child Health in Sector 30 has become the first government hospital in Uttar Pradesh to offer free of cost testing for spinal muscular atrophy, a rare genetic disease, hospital officials said on Tuesday. Doctors at Child PGI said he cost of SMA testing at government hospitals in Uttar Pradesh and Delhi range between ₹ 3,500 …

Uttar Pradesh Child Testing Hospital Cost Noida Free
What is ALS disease? Symptoms, diagnosis and treatment for rare condition
9 months ago

What is ALS disease? Symptoms, diagnosis and treatment for rare condition

The Independent  

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Living Well Muscle Als Rare Condition
Hyderabad Doctors Urge Action on Comprehensive Policy and Enhanced Patient Care
9 months, 3 weeks ago

Hyderabad Doctors Urge Action on Comprehensive Policy and Enhanced Patient Care

Deccan Chronicle  

Hyderabad: With Rare Diseases Day on 29 February, healthcare experts are calling for a comprehensive Rare Disease Policy as the need of the hour. According to the World Health Organization, rare diseases typically affect fewer than 1 in 1,000 individuals, and in India, around 70 million people grapple with 450 rare diseases, including the particularly debilitating Spinal Muscular Atrophy. Dr. …

India Policy Hyderabad Rare Care Rare Diseases Diseases
JJ hospital doctors perform spine reconstruction surgery on 14-year-old boy
10 months, 2 weeks ago

JJ hospital doctors perform spine reconstruction surgery on 14-year-old boy

Hindustan Times  

Mumbai: A 14-year-old boy who lost his mobility and was left bedridden for a few months due to a genetic disorder was able to get back on his feet after doctors at JJ hospital successfully performed a spine reconstruction surgery on him. “Neurofibromatosis is not very uncommon but, in his case, the deformity caused is very rare,” Dr Dheeraj Sonawane, …

Surgery Hospital Spine Akshay Jj Hospital Dr Sonawane
DJ Michael Bibi diagnosed with rare brain and spinal cancer
1 year, 6 months ago

DJ Michael Bibi diagnosed with rare brain and spinal cancer

The Independent  

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Brain Instagram Living Well Bibi
Garden for spinal injury patients wins Best Show Garden at Chelsea Flower Show
1 year, 7 months ago

Garden for spinal injury patients wins Best Show Garden at Chelsea Flower Show

The Independent  

Sign up to the Independent Climate email for the latest advice on saving the planet Get our free Climate email Get our free Climate email SIGN UP I would like to be emailed about offers, events and updates from The Independent. Read our privacy policy An “adaptive garden” suitable for disabled patients with spinal injuries has won the Best Show …

Chelsea Harris Best Plant Garden
Finding love is always a long shot, but these couples with disabilities are defying all the odds
2 years ago

Finding love is always a long shot, but these couples with disabilities are defying all the odds

ABC  

Watching your dinner date stare at their mobile phone may not feel like a sign the romantic evening is going well. Key points: Nathan Jason and Jenna Jones, who share an impairment that affects one in 40,000 people, have found love with each other Hannah Dodd and Steve Elliot are both wheelchair basketball athletes who live with similar spinal injuries …

Disability Jason Hannah Supplied Nathan Steve Jenna
Guj: Bharuch Family Needs Injection Worth Rs16 Cr for Child Diagnosed With Spinal Muscular Atrophy
3 years, 4 months ago

Guj: Bharuch Family Needs Injection Worth Rs16 Cr for Child Diagnosed With Spinal Muscular Atrophy

News 18  

After Dhairyaraj Sinh of Mahisagar district and Vivan Vadhel of Gir Somnath district of Gujarat, another child was diagnosed with a rare disease called Spinal Muscular Atrophy. People collected Rs 16 crore needed for the treatment in Dhairyaraj Sinh’s case. Now, a similar Rs 16 crore injection is required for Parth Pawar of Bharuch for the spinal muscular atrophy Type-1 …

Spinal Muscular Atrophy Bharuch Rs16 Cr
Pride of Britain winner says his childhood in hospital made him feel 'worthless'
3 years, 4 months ago

Pride of Britain winner says his childhood in hospital made him feel 'worthless'

Daily Mail  

A Pride of Britain winner who has raised more than £1million for charity has revealed how spending his childhood in and out of hospital made him feel 'worthless'. Jamie McDonald, 35, from Gloucester, was born with syringomyelia, a rare spinal condition which meant the first nine years of his life involved constant medical treatment. He is pictured right as a …

Hospital Feel Run His Life Jamie Gloucester Spinal
Spinal Muscular Atrophy awareness: Treatment advances offer hope to SMA patients
3 years, 4 months ago

Spinal Muscular Atrophy awareness: Treatment advances offer hope to SMA patients

Firstpost  

It is crucial to raise awareness about the disease among specialists like paediatricians and neurologists to recognize its early signs. Need better awareness in India In India, delay in the diagnosis of SMA stems from a limited number of labs performing genetic diagnostic studies and low disease awareness. Timely diagnosis and early initiation on therapy can help SMA infant patients …

India Disease Treatment Therapy Gene Patients Motor
4-month-old Gujarat infant battles rare genetic disorder, requires Rs 16 crore injection for treatment
3 years, 4 months ago

4-month-old Gujarat infant battles rare genetic disorder, requires Rs 16 crore injection for treatment

India Today  

A four-month-old infant in Gujarat is suffering from a rare genetic disorder called Spinal Muscular Atrophy and his family members are asking for help for his treatment. To save the infant's life, an injection costing Rs 16 crores is needed. It leads to a loss of certain nerve cells in the spinal cord called motor neurons and progressive muscle wasting. …

Sma Genetic Disorder Rare Genetic Disorder Rs 16 Crore
Gujarat Couple Raise Rs 16 Crore via Crowdfunding to Save 5-Month-Old Son
3 years, 7 months ago

Gujarat Couple Raise Rs 16 Crore via Crowdfunding to Save 5-Month-Old Son

News 18  

A couple from Gujarat has raised Rs 16 crore with the help of a crowdfunding platform to buy a gene therapy injection for the treatment of their 5-month-old son suffering from spinal muscular atrophy, a rare genetic disorder. Mr Rathod said he and his wife Jinalba managed to raise 16 crore for their son Dhairyaraj’s treatment within 42 days of …

Gujarat Gene Crore Son Injection Spinal Rathod