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Articles for Spinal Muscular Atrophy, search results for hospital

Need for awareness to tackle symptoms of Spinal Muscular Atrophy
1 month ago

Need for awareness to tackle symptoms of Spinal Muscular Atrophy

Deccan Chronicle  

Hyderabad: Eminent experts in the state have put an impetus on the need to highlight the significance of spreading awareness about the symptoms of Spinal Muscular Atrophy and management strategies to mitigate its impact on patients and their families. It is crucial to raise awareness among healthcare professionals, expectant parents, and the public about rare diseases and SMA so that …

Symptoms Sma Spinal Muscular Atrophy Muscle Weakness Respiratory Muscle
Spinal muscular atrophy Symptoms in Infants Every Parent Should Know
5 months ago

Spinal muscular atrophy Symptoms in Infants Every Parent Should Know

Deccan Chronicle  

SMA can affect a child's ability to crawl, walk, sit up, and control head movements. Recognizing the early signs and symptoms of Spinal Muscular Atrophy in infants is crucial for timely intervention and treatment. Dr. Ramesh Konanki, Consultant Pediatric Neurologist at Rainbow Children’s Hospital, Hyderabad told “Children who have noticeable SMA symptoms shortly after birth usually are very weak. Poor …

Symptoms Sma Spinal Muscular Atrophy
Jaipur baby gets world’s most expensive injection worth ₹17 crore; crowdfunding led by Sonu Sood, Deepak Chahar
7 months, 3 weeks ago

Jaipur baby gets world’s most expensive injection worth ₹17 crore; crowdfunding led by Sonu Sood, Deepak Chahar

Live Mint  

In a remarkable display of communal solidarity, the city of Jaipur rallied behind twenty-two-month-old Hridyansh in his battle against Spinal Muscular Atrophy Type 2. Notable figures like cricketer Deepak Chahar and actor Sonu Sood lent their voices to the cause, amplifying its reach across social media platforms. As reported by IANS, the doctor said, “The world's most expensive injection, costing …

Jaipur Sma Ians Spinal Muscular Atrophy Hridyansh
Hyderabad Doctors Urge Action on Comprehensive Policy and Enhanced Patient Care
10 months, 1 week ago

Hyderabad Doctors Urge Action on Comprehensive Policy and Enhanced Patient Care

Deccan Chronicle  

Hyderabad: With Rare Diseases Day on 29 February, healthcare experts are calling for a comprehensive Rare Disease Policy as the need of the hour. According to the World Health Organization, rare diseases typically affect fewer than 1 in 1,000 individuals, and in India, around 70 million people grapple with 450 rare diseases, including the particularly debilitating Spinal Muscular Atrophy. Dr. …

India Policy Hyderabad Rare Care Rare Diseases Diseases
Call to make cure for spinal muscular atrophy affordable
5 years, 4 months ago

Call to make cure for spinal muscular atrophy affordable

The Hindu  

A get-together of families of children with spinal muscular atrophy was organised under the aegis of Cure SMA Foundation and Aster MIMS in Kozhikode on Friday. said the get-together was being organised to create awareness regarding the rare disease among general public and to mobilise public opinion to pressure the authorities to make the cure for the disease available in …

Cure Sma Spinal Muscular Atrophy Muscular Atrophy
At $2M, priciest ever medicine treats fatal genetic disease
5 years, 7 months ago

At $2M, priciest ever medicine treats fatal genetic disease

Associated Press  

U.S. regulators have approved the most expensive medicine ever, for a rare disorder that destroys a baby’s muscle control and kills nearly all of those with the most common type of the disease within a couple of years. Novartis said it will let insurers make payments over five years, at $425,000 per year, and will give partial rebates if the …

Children Medicine Disease Gene Evelyn Spinal Muscular Atrophy Novartis